Saturday, March 24, 2012

Not surprising, but unexpected.

"The Plan" page has been updated with the details of the last few appointments.  Although we knew that surgery was always a possibility it is still unexpected.  You never want to think of your kiddo needing to have surgery.  We broke the news to Braiden last night.  He was not happy about needing surgery, he walked away and wouldn't listen to anything beyond needing surgery.  However, this morning the first thing he says to me was, "Mommy, do I need surgery?"  So, that opened the door for a conversation about what will happen.  He listened and asked questions and stated "I hate Percy's disease!"  I told him I understand.  We talked about what it means to be brave, that being brave doesn't mean not being afraid.  Being brave means doing what you need to do in the face of fear.  It was a good conversation.  I'm sure we'll have many more conversations as he processes what he about to go through.  

I also had a conversation with Sebaztian last night about it and how it might be affecting him. I made sure he know I was proud of how much he cares about his brother and how mature he was being about it.  We talked about life after the surgery and how much attention Braiden will need.  I ackowledged that Sebaztian may feel "left out" and that we would do our best to make sure he doesn't feel that way, but, I told him to make sure to come to me and let me know if he was feeling upset, frustrated or left out and we would do something about it.

As I stated surgery is not a surprise but it is unexpected.  I have confidence in the Doctor.  But am I freaking out....yeah, just bit.  Please keep Braiden and us in your prayers.

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