50/50 not so much

So..as some of you may have read, the doctor OK'd Braiden using the wheelchair 50% and walk 50%.   Umm...not so much working out.  I even was allowing for less than that and he just can't keep it in his head to stay off of it. He's been limping a lot and complaining of pain.  I'm confining him to the wheelchair again.  The doctor thought it would make things easier for all involved to let him walk some more .....but it has made it more difficult.  Braiden just doesn't work that way....either he can walk or he can't.

Updated "The Plan" page

Braiden had an appointment today, checkout "The Plan" page for the update.

I just adore this kid!

This is what I found Braiden doing while he was waiting for me to start school time with him.

"Working on his muscles."  The shirt needs to come off, of course.

New Wheelchair is Here!

Checkout the custom wheelchair!  It is so much easier to manuever for him.  It goes through the grass and dirt way better.  We decided to get a clothing guard instead of armrests.  The armrests worked fine for resting his arms, but still made it a bit challenging for him to comfortably reach the wheels.  Not a big deal, he doesn't do much resting when he is in the chair anyway.....he's more go, go, go.

Wheelchair!

Hip, Hip, Hurray!  The custom wheelchair will be here on Monday!

Waiting, waiting, waiting..........

Not so patiently waiting for the custom wheelchair. Hopefully they'll call today.

Boundless energy and determination

This kiddo is so amazing.  He loves working out, always has.  He was just doing his workout, with his shirt off of course, and knowing that he cannot put any weight on his right leg he did 11 push ups with his right leg lifted off the ground only supported by his left leg.   Did I mention he does awesome push-ups, better than alot of adults.

Trickin at the skatepark

This kid is going to have some seriously strong arms.  It's hard manually wheeling yourself up these ramps.  He was even making mom and dad a little bit nervous.  Can't wait for his custom wheelchair, it comes with a seat belt.  Oh....and bringing a helmet next time we bring him wheelin'.

Give him a break...geez

Tuesday night Braiden and I didn't get much sleep.  Starting at about 4:30am Braiden would wake up come to our room crying about his ears and head hurting, so he would crawl into bed with us, toss & turn, kicking me so I can't sleep, so I would put him in his bed. Lather, rinse and repeat until about 7:00am.  He and I were pretty darn tired yesterday.  His fever came back last night :o(  He seems fine so far today.  He hasn't complained of leg pain at all yesterday or today.  

Pain now in the left leg

For the last couple of days Braiden has also been complaining of pain in his left leg.  :o(
As I had mentioned in the About LCPD page it can affect the other leg in 1 out of 4 kids.
I am hoping it is just sore from being used more than it is used to.

Pain Management

Was planning on just using ibuprofen as needed this week, but this does not seem to be the right time.  Yesterday the fever and hip pain.  Today he said his hip was hurting, too.  PT exercises were causing pain, so I kept it to a minimum and gave him some ibuprofen for the pain.  I think tomorrow I will try to give him 100 mg in the am & pm instead of 200mg.  We'll see if that helps.

Not feeling so well

My little man is a bit under the weather.  Cough, stuffy nose and a fever.  I think the fever is making his leg especially achy :o(  He's been complaining about his leg quite a bit today.