4th of July

We all had a blast over the weekend.  I decided to give Braiden some freedom at the cabin.  I gave ibuprofen every 6 hours to allow him to walk and play, otherwise he would have been miserable.  He had lots of fun jumping off the boat into the lake.  And jumping off the end of the dock. I was quite impressed!  The weekend went by without any leg pain.....this is only something I'll do for special occasions. 

The Doctor said it would be a frustrating journey......he was right

It is so very hard to tell your 4 year old that he can't be walking and running and jumping and playing.........
Been trying to give him a little bit more walking time and it just isn't happening he has been in so much pain the last week.   I have pretty much completely restricted him to his wheelchair again with a little walking time here and there for things like playing in the sprinkler or going swimming, but that's it.  I know no matter how frustrated I get that it is way harder on Braiden.....which in turn makes me more frustrated.  I know things happen for a reason, but, God has yet to reveal that reason to us.  Praying for strength to get through this, it's only been a few months and I'm exhausted.