Adventures with Legg Calve Perthes Disease
Thursday, November 14, 2013
Jumpity, jump, jump!
Braiden's Ortho appointment went well today. Braiden asked Dr. S if he can jump now and the Dr. had to tease him a bit, but, he said Braiden can jump now. So, Braiden is happy! He can jump without getting hollered at ;)
Saturday, April 20, 2013
How do I keep this boy still?
Braiden is doing great! Just five days after his surgery and he is "up and running" like nothing happened. Although I am thrilled that he is recovering well it is going to be challenging to constantly have to remind him to not run, jump, wrestle, bounce,etc., for the next 5 weeks. Pray that I am able to gently and gracefully remind him of his limitations and also pray that he heeds the limitations placed on him. He's my limit pusher.
Monday, April 15, 2013
Braiden is a Rockstar!
Seriously Braiden is a rockstar! I am so very impressed with how he handled surgery today. When we were in the operating room waiting to start the anesthesia Braiden says to the room full of nurses, "Ok, let's start this." So, in my book that makes him a total Rockstar....he's my brave hero.
The doctor did an arthrogram to see how the joint is articulating and the shape of the femural head, Dr. S. said he was pleased with the arthrogram...Yay! He also removed the plate on his femur. All went well.
Afterwards, aside from the pain he was doing well. A few minutes after he was brought back to his room he was still in quite a bit of pain and was crying, but, he paused to ask me a very important question, "Mommy, on our way home can we stop at Burger King?" He was a hungry boy. Once we got the pain under control they let us go home.
He can bear weight on that leg as tolerated, but absolutely no running, jumping or anything with a good risk for a fall for 6 weeks. The screw holes are an easy fracture point.
Thank you to all that prayed and sent good thoughts and love our way, we appreciate it greatly!
The doctor did an arthrogram to see how the joint is articulating and the shape of the femural head, Dr. S. said he was pleased with the arthrogram...Yay! He also removed the plate on his femur. All went well.
Afterwards, aside from the pain he was doing well. A few minutes after he was brought back to his room he was still in quite a bit of pain and was crying, but, he paused to ask me a very important question, "Mommy, on our way home can we stop at Burger King?" He was a hungry boy. Once we got the pain under control they let us go home.
He can bear weight on that leg as tolerated, but absolutely no running, jumping or anything with a good risk for a fall for 6 weeks. The screw holes are an easy fracture point.
Thank you to all that prayed and sent good thoughts and love our way, we appreciate it greatly!
Thursday, April 11, 2013
Who ordered this crazy weather anyways!?
We got in the van, drove towards 94, watched many people slipping and sliding, 94 gridlocked, it's supposed to be worse this evening when we would be coming home......we decided not to risk it. Rescheduling yet again. Thanks to all that prayed.
Wednesday, April 10, 2013
Surgery Rescheduled
Braiden's surgery to have the plate and screws removed from his femur is set for this Thursday. Would love your prayers for a successful surgery, speedy recovery, and peace for Braiden. And peace of mind for this anxious mama. I'll update you all after the surgery.
Saturday, March 9, 2013
Just another bump in the road....
Surgery to remove the plate and screws in Braiden's femur was scheduled for February 14th. But, my stepfather Joe had different plans....on February 13th he finished what he was here to do and is now in a better place. Heaven will never be the same! Braiden was very close to him as was my whole family. We felt it was just too much stress all at one time and decided to post pone the surgery. We have not set a new date for that yet. Braiden's hip has been bothering him more frequently the last few weeks and he has been very tired...he doesn't sleep well, he says he has nightmares about Joe. I am thinking maybe April will be a good time to reschedule the surgery. I don't want to wait much longer, but I don't want Braiden to be under too much stress either. I will keep you all posted.
Wednesday, February 6, 2013
Ruining all of our fun.
You know 95% of the time Braiden handles Perthes like a rockstar. But the times he has a hard time with it can just break my heart. Last night when putting the boys to bed we were talking about Braiden's surgery next week to remove the plate and screws and that Braiden would have to sleep on the bottom bunk for a while after the surgery. He starts crying and saying, "I just don't understand why I have to have Perthes disease." So I snuggle up with him and tell him, "I know this is hard for you, but you are not in this alone. We love you and will always be there for you." He is still crying then said, "But, it ruins all our fun." Then I talk to him about all the fun our family has despite the fact he has Perthes. It is so hard watching your kiddo go through something difficult that you can really do nothing about. I can't fix it. All I can do is give it to God...put it in his hands...and wait. But it is hard.
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